“You should have seen her back in the day,” I’d utter weakly as the nurses worked through their medical routine with my mother. Mom was having a bad day and the nurses had call bells screaming for them. Mom’s medical team hardly had the time to get her settled in, let alone reminisce about who she used to be before she got so sick. Each time as the nurses rushed off to their next task, I was left in the dust of those memories; as well as the reality of the now.

Mom was in pain for the last twenty years of her life. In her last year, she suffered so greatly that I feel ill-equipped to try to do her pain justice in writing. The decline was swift and unforgiving. The results of her declining health were revealed to me, I know now, in doses as she felt I could handle them.

To what lengths my mother was willing to go to shield me from the worst of her suffering would not become clear to me until just two Sundays ago. Mom had been “holding her own” medically for several weeks in spite of being in both end stage liver failure and in the final stages of COPD. One day she called me on the phone, begging me to come see her. She said she was not feeling well, that she was having bad nausea. Sensing there was more to it, I went down to see her.

Once we were together to talk, Mom explained to me that she had been feeling quite sick during the overnight and that none of the comfort medications seemed to be helping her. When I asked her what she thought may be going on, she told me that she thought that “this was the end.”

After she allowed me a moment to recover from the reality she had just hit me with, she continued. Mom told me that she was tired, that she did not want to fight anymore and that she was sorry. As if reciting a list she had rehearsed, she then told me that it was okay to be sad. A single tear rolled down her cheek. One tear told me everything I needed to know about how serious she was about what she had said. That one tear was all mom had left. She truly was tired. Mom was a kind of tired that few of us will ever understand.

People who met Mom later in life truly missed out on the ride of a lifetime with my mother. The folks who met mom in her final years saw a woman who had been battling serious illness since her late thirties. She was sick enough to be deemed completely disabled by her early forties. Mom had really been through the ringer with medical professionals and with life in general by the time she was in her late 50’s. She was tired, she was irritable and most of all, Mom was sick of everyone’s shit. Every ones.

The medical teams in Mom’s life never could have known the true horrors mom had suffered at the hands of those who were disguised as helpers and lovers in her life. They definitely didn’t know that what came off as my mother being demanding and critical was actually my mother finding her voice and using it for the first time in much, much too long. They couldn’t have known that while I may have told mom to “be nice” out loud, I was silently cheering my heart out for her newfound emotional strength. Her body became terribly weak in her final year of life. My mother’s heart was as brave and fierce as it ever was. She was ready to show the world what her heart was stitched together with.

Mom passed away five days after she told my son and I that she would soon be leaving us. In those final five days, memories that she, my brother and I had shared together floated in and out of my mind in a dream-like haze. Dance recitals, school proms, holidays. On the fifth day, mom left these memories safe with me and joined my brother and my father, in heaven.

About a week after mom passed away, I opened mom’s journal for the first time. I had gifted mom this journal shortly after my brother’s passing in August. I hoped that writing would help her process and cope with the loss of her son. The journal was titled, “A love letter to my daughter.” The leather books contents consist of pages upon pages of her thoughts of love and concern for each person in her life. My mother wrote about me in nearly every passage.

I was humbled to the core at the notion that someone, anyone, would hold me in that kind of regard in their lives. With all of mom’s health problems, the pain she endured every day, while facing the end of her life; all mom could think about was her love and concern for those who had loved her. Suddenly, I wished desperately that the world, especially those who had seen mom at her worst, could see mom as I did in that moment. I knew right away that it was too late for them. As for me, I’ll keep telling everyone who will listen. Love has been described in countless ways. In songs, in letters, on banners in the sky. If you truly want to know what love in the purest form feels like, a mom-hug is the closest thing.